Help with celiac disease?

5 Comments

1. Ben P says:

   February 12, 2010 at 5:59 am

   Celiac Support Group

   My mums gluten free and id honestly let them enjoy eating all the things that have gluten in whilst they can. For example as you probably know, people on a gluten free diet tend to miss the basic foods in life such as bread, let alone all the other cakes and treats that have gluten in. I do feel sorry for them though, they wont be able to enjoy a refreshing pint in the future!

   Although its hereditary, theres still a good chance however that they wont develop full blown ceoliac disease and therefore you would have deprived them of enjoyable eating.
2. Moped Mama says:

   February 14, 2010 at 7:42 am

   Gluten Free Product

   this is heritary, what are your symptoms? ahh? you can get another dr, ya know , i am on this diet now 2 wks i have IBS chronic fatigue ,fibromyalgia. abdomunal pain gastrit polyps ADD ,bloating .i have a dump syndrom and my colonoscopy was normal no blunting or redness, my gastoscope showed hiatle hernia severe gastritis polyp beign no blunting , i have hypothyroid symptoms normal level multi goitus so i already tested for food and eviro allergies rx allergys wheat was an allergy , so i have intolerences to wheat not celiac so here i am at 43 suffering gaining wt for no reason and now my wt is moving , on this gluten free diet, my bro 50 dx celiac , lactose issues , my sister in law dx severe celiac tiny petite girl ,35 and her son 8 ADD big time, is + , behaving better on gf her other 2 kids are normal but carry the factor, one petite one obese , so i am feelng better i’m not fatigued after i eat, not craving sugar or food so just cook for everyone gluten free ,for 1 wk and add mild doses of wheat white flour and see if the normal kids complain of a belly ache or diarrhea issues happy to share cooking ideas
3. rubyredmae says:

   February 16, 2010 at 10:48 am

   Gluten Free Diets

   I find when someone in your family has a food allergy then it’s soooo much easier to just put everyone on the same diet. I have a sensitivity to wheat and milk products and my daughter has a problem with milk protein. So my hubby has to eat what we do even though he doesn’t have food allergies. So it can’t hurt your other kids to eat gluten free, in fact it may make things easier for you. As for the school simply explain that they tested positive with the DNA and that they haven’t started to have problems yet so they are not officially diagnosed, but need to stay away from it so that they don’t have problems in the future. You one child diagnosed will give them the proof they desire. If they still give you trouble make their lunches from home. Remember if one doctor isn’t giving you the care you feel is right than you can always find another. Doctors “practice” medicine and do a lot of opinion driven medicine. Medicine isn’t always black and white, it’s a big grey area and if asked it doesn’t hurt to retest and keep an eye out for future changes with your children.
4. sailor says:

   February 19, 2010 at 1:26 pm

   Celiac Support

   Here is an article written by a doctor that pretty much addresses the problem you are faced with. His basic conclusion is that if you suspect celiac disease, put the child on a gluten free diet and let the child challenge gluten later in life after growing up. It seems like it would be much easier for you if everyone ate gluten free and you didn’t have to worry about contamination at home. Talk to the school nurse to see what you need to do about school food.
5. Anama says:

   February 20, 2010 at 3:20 am

   Gluten Free Casein Free Diet

   I would go back to the doc and ask for the screening bloodwork for my other 3 kids. Then, to prevent cross contamination of your one CD child, go ahead and put your whole family on gluten free in home. Gluten eaters can easily eat all their gluteny stuff outside the home until you can come up with a plan to seperate the two areas. My friend has a mini fridge and one of those portable island carts in the garage and they keep breads and gluteny food in it to prevent cross contam. with her and her daughter. Your other 3 kids can always have a gluten challenge later when they are mostly grown!
   Please read the article on celiac.com that Sailor provided, it was where I was going to send you anyway, lol! (we are both celiacs ourselves)
   I think if you go in and talk to the school about the situation, let them know your kids will have to be monitored their entire lives for CD and that the gf diet is in essence, preventative treatment.
   My son was gf until 5th grade, underwent a challenge, his bloodwork came back fine. We allowed him to eat small amounts of gluten and watched him like a hawk. Now he eats whatever he wants to, but tends to eat as gf as he can (he says gluten makes him sleepy and “bogged down” feeling. He’s def. not used to processed foods either, lol! Not the worst thing in the world to come from it, lol!). He is re-tested every 4 years, and will continue to be monitored his whole life since celiac can be triggered at any time.
   Hope this helps. I know how hard it is to feel one thing in your gut, and then knock heads with the docs! Especially tough when it comes to your kid’s health!
   Blessings! and happy healing to your one child!

   Also, to the first answerer, there is gluten free beer, even a gf microbrew fest in Belgium that I plan attending next year. Look at Green’s beer, there are sev. varieties. I like the ale, dubble and tripple the best. Even Budwiser has a gf beer now, so we can have a pint if we want! Besides, most restaurants have hard cider anyway, so if there isn’t a gf beer available, I simply order wine or the cider.